On thursday, the habfurt library and information center (biz) on the market square opened the exhibition "living with epilepsy – perspectives of a disease" open. She is up to 8. March free of charge during the biz opening hours.
In a photo workshop, people affected by epilepsy approached the subject of epilepsy in a creative and artistic way and captured their individual experiences with the disease in photographs. Individual works and photo series have been created that capture the experience of seizures from different perspectives.
In addition to the 30 or so photos, there are a number of information panels explaining the different types of seizures and providing information on simple first aid measures for epilepsy. Since one percent of the population suffers from epilepsy, the probability of witnessing a seizure is not at all small.
Last year, a project on the topic of epilepsy was held in the library with the school of geriatric nursing hofheim instead of. The result is an installation that complements the photo exhibition.
According to henrike staab from the epilepsy counseling service in lower franconia (juliusspital foundation in wurzburg), the goal of the exhibition, in addition to the artistic aspect, is to make epilepsy a topic of conversation. The exhibition also aims to reduce the fear of epilepsy as a taboo subject and to correct some prejudices", underlines the social pedagogue.
Monika stratz-stopfer, head of the contact and information center for self-help at the district office of habberge (kos), was also present at the opening and pointed out that there are currently around 80 active self-help groups in the district. We are a cooperation partner in this project and are pleased to be able to show this exhibition for the second time in our district." Four years ago the traveling exhibition was on display at the city library in zeil.
Stratz-stopfer added that kos, as an advice center for self-help, had supported the local epilepsy self-help group in habfurt during the start-up phase and was always available for help and advice.
Those affected can get help with their disease at the epilepsy counseling center in lower franconia, which has been in existence since 2001. It is a point of contact for people with epilepsy of all ages, for relatives and professionals who work with affected people.
The counseling service includes information about the disease, help with legal and professional issues, and support with personal, social and family problems. The aim is to improve the quality of life for sufferers and their families. The counseling center sees itself as a supplement to medical care and as an offer for self-help. In addition to counseling, seminars and training courses are offered for patients, relatives and professionals. The foundation juliusspital in wurzburg is responsible for the epilepsy counseling in lower franconia. The consultation offer can be taken up locally with aubensprechtagen in habfurt.
What is epilepsy?? There is no such thing as "epilepsy", but many different manifestations: from brief lapses of consciousness (so-called absences) to sensory disturbances and muscle twitching to the "grand mal" usually associated with the term epilepsy-seizure, which is accompanied by a loss of consciousness, often a fall, crying and other physical symptoms. Most forms of epilepsy are easily treatable with drugs (so-called antiepileptic drugs) and can even be cured if the course of treatment is positive. In addition to drug treatment, there are other alternative treatment options. This also includes epilepsy surgery of the brain, which can often achieve lifelong freedom from seizures.
Epilepsy is only called epilepsy when more than two seizures have occurred. Most forms of epilepsy begin in childhood and early adolescence, and the rate of new cases also increases in later life. Accidents involving brain injuries often bring with them a tendency to epileptic seizures.
Today, about 800,000 people in germany suffer from epilepsy. There are about 50 million epilepsy patients worldwide.
In addition to medical questions, the diagnosis of epilepsy often raises legal and social problems that can weigh as heavily on those affected as the disease itself: the unpredictability of the seizures and the associated feelings of helplessness and uncertainty, the dangers in everyday life that are often difficult to assess, and the prejudices and ignorance of those around them and the resulting reactions.